Engagement of multiple stakeholders in the development of a tobacco prevention clinical support tool for pediatric primary care

Authors: Salloum RG, Thompson LA, Theis RP, Arango C, Jones RE, Shenkman EA

Category: Electronic Health Records (EHRs), Lifestyles Behavior, Energy Balance & Chemoprevention
Conference Year: 2018

Abstract Body:
Purpose: Following guideline recommendations for interventions to promote tobacco prevention in pediatric primary care, we are developing a patient-facing clinical support tool to screen pediatric patients for tobacco use. The electronic tool will screen for use and susceptibility to conventional and alternative tobacco products, and promote patient-provider communication about tobacco prevention. The development of the tool has followed an iterative process, engaging multiple stakeholders prior to implementation. Methods: During the pre-testing phase, our research team consulted with 7 Citizen Scientists via CTSA-sponsored Implementation Science Studios. Throughout the development phase, we engaged 24 participants from 3 pediatric clinics in provider focus groups. Usability testing of the tool was conducted via in-depth, cognitive interviewing of adolescent patients recruited from the same pediatric clinics. Results: Citizen Scientists played a critical role in shaping the design of the tool, contributing to the final selection of educational content and participating in role-play during mock-up patient interviews. Cognitive interviews with patients ensured that all systems were in place for the feasibility trial and assessed ease of navigation. Focus group participants offered substantive recommendations for integrating the tool into clinical workflow and provided input on the intervention’s expected acceptability, adoption, appropriateness and feasibility. A key recommendation was to build the electronic tool into the existing patient portal, which furthers its integration with increasingly common clinic processes, streamlines patient accessibility, and reduces clinical burden. Conclusions: The inclusion of multiple stakeholders ensures that the end-user is represented in the development of new interventions. Citizen Scientists can be valuable partners in implementation research. Engaging key stakeholders to discuss implementation outcomes throughout the implementation process can improve the quality, applicability, and relevance of the research, and enhance implementation success.

Keywords: Patient portal, stakeholder engagement