ASPO Abstracts
I've never personally discussed the cost of anything:
Category: Survivorship & Health Outcomes/Comparative Effectiveness Research
Conference Year: 2023
Abstract Body:
Purpose: Cancer organizations recommend cost-of-care (CoC) information be provided to cancer patients by their care teams. Little is known about the CoC conversation experiences and preferences of adolescents and young adults (AYAs) with cancer. Methods: Eligible participants were 18-39 years old, diagnosed with cancer, and insured (N=24). Recruitment occurred at two cancer centers in Utah from 10/2019-03/2020. Data were collected via survey and semi-structured telephone interviews, which were recorded and transcribed. Survey questions contained demographics. Interview questions were asked pertaining to willingness, perceived usefulness, and past experiences with CoC conversations with their cancer care team. Interviews were analyzed by applying two rounds of thematic content analysis. Summary statistics were calculated for demographics. Results: AYA participants were on average aged 26.4 years, with many currently receiving treatment (62.5%). Most (83%) reported interest in discussing CoC but previous CoC conversations were infrequent (20.8%). Participants preferred CoC conversations to occur with social workers (25.0%), nurses (20.8%), oncologists (20.8%), or support team members like financial navigators or clinic administrators (12.6%), while others just wanted "someone who knows what they are talking about
Keywords: Cost-of-care conversations, adolescent and young adult cancer, quality of care