Utilization and Perception of Medical Records - A Comparative Analysis Based on Cancer Survivorship

Authors: Khan S, Lewis-Thames MW, Han Y, Fuzzel L, Langston ME, Moore JX

Category: Survivorship & Health Outcomes/Comparative Effectiveness Research
Conference Year: 2020

Abstract Body:
Purpose: To examine how cancer survivors differ from those without a history of cancer with regards to utilization and perception of medical records broadly and online medical records specifically. Methods: We conducted a cross-sectional study of 3454 respondents (583 Cancer Survivors and 2871 respondents without a history of cancer) from the Health Information National Trends Survey 5, Cycle 2. The association of medical record utilization and perceptions with cancer survivorship was assessed using survey-weighted logistic regression with adjustment for age, gender, and race. Results: Cancer survivors were more likely to report that a provider maintains a computerized medical record (Adjusted Odds Ratio [AOR] = 2.01; 95% CI = 1.22 -3.33) and were more likely to report confidence in medical record safe guards (AOR = 1.46; 95% CI = 1.04 – 2.05). Cancer survivors were no more likely to report privacy concerns as a reason for not accessing online medical records (AOR = 1.11; 95% CI = 0.42 – 2.93), however, cancer survivors were more likely to report a preference for speaking directly with a provider as a reason for not accessing online medical records (AOR = 2.25; 95% CI = 1.00-5.08). Conclusion: Although cancer survivors are more likely to trust in medical records safe guards and do not express increased concerns about online medical record privacy, a preference to speak directly to a provider is a barrier of online medical records use which could likely be due to the complexity of cancer care strategies. Future efforts should ensure that that online medical records effectively enhance and supplement communication between providers and cancer survivors.

Keywords: cancer survivorship, medical records, online medical records, utilization, perception