Interventions to Address the Financial Burden of Cancer Care: Recommendations from the Field

Authors: Zahnd WE, Petermann V, Teal R, Vu M, Vanderpool RC, Rohweder C, Askelson N, Edward JE, Farris PE, Koopman Gonzalez SJ, Ko LK, Eberth JM, Cancer Prevention and Control Research Network Rural Cancer Workgroup.

Category: Financial Hardship Associated with Cancer
Conference Year: 2020

Abstract Body:
Purpose: To identify and understand recommendations for addressing cancer patients’ financial barriers identified by financial and social support staff at cancer centers across seven states. Methods: Members of the Cancer Prevention and Control Research Network (CPCRN) rural cancer workgroup conducted 35 interviews with staff who provided financial navigation services to cancer patients. Participants were recruited from 29 cancer centers in both rural and urban settings, including National Cancer Institute- designated, and Commission on Cancer (CoC)-accredited, and non-accredited centers. A semi-structured interview guide was used to identify best practices in assessing and addressing financial distress. Interviews lasted approximately 60 minutes, were audio recorded, and transcribed verbatim. A codebook was developed from the research questions, interview guide and discussion with research teams. Transcripts were double coded for thematic analysis, and facilitated with Dedoose, a qualitative software program. Results: Current, effective practices identified by participants included using distress screening tools, patient education visits with a financial counselor, tailored resource lists, patient tracking systems, and the use of telemedicine for rural cancer patients. Participants recommended both policy and clinical changes to address financial toxicity. Policy changes included fixing the “broken system” of policies related to health insurance, pharmaceutical companies, and job protection for patients and caregivers. Clinical recommendations included addressing financial concerns prior to treatment initiation through required financial counselor meetings, development of comprehensive resources and networks for staff to assist patients, financial training for cancer center staff, and improving transportation and lodging opportunities for patients. Conclusions: Cancer center staff providing financial navigation services identified core services related to assessment, education, and mitigation of financial distress among cancer patients. They also proposed policy-, system-, and clinic-level approaches to improving reduce costs borne by patients, which may help address the growing challenge of financial toxicity among cancer patients.

Keywords: financial toxicity; cancer centers; disparities; qualitative interviews