ASPO Abstracts
Future opportunities in cancer registry-survey data linkages: SEER-MHOS and SEER-CAHPS
Category: Survivorship & Health Outcomes/Comparative Effectiveness Research
Conference Year: 2019
Abstract Body:
Purpose: The National Cancer Institute supports two public data resources linkingpopulation-based cancer registry information with health outcome and patient experience survey data. Here we provide an overview of theresources, current projects, recent findings, and priority areas for future research.Methods: Surveillance Epidemiology and End Results (SEER) registry information are linkedwith the Medicare Health Outcomes Survey (MHOS) and the Medicare Consumer Assessment of Healthcare Providers and Systems(CAHPS®) surveys. SEER-MHOS currently contains 15 cohorts of Medicare Advantage (MA) beneficiaries surveyed from 1998to 2014, representing over 140K patients with >2 million MA enrollees without a history of cancer. This resource allows forstudies of health-related quality of life (HRQOL) and other patient-reported outcomes (PROs) in individuals with and without cancer. SEER-CAHPSlinks cancer registry data with patient experiences surveys (CAHPS) and Medicare claims. This resource provides an opportunityto assess health care experiences of MA and Medicare Fee-for-Service (FFS) beneficiaries. SEER-CAHPS includes over 240K patientswith cancer and 805K patients without a history of cancer.Results: SEER-MHOS and SEER-CAHPS analyses have produced manuscripts on patient HRQOL andpatient experiences of health care, respectively. To date, SEER-MHOS has over 75 data use agreements, and >43 totalpublications. Most projects include prostate (64%), breast (58%), or cervical (58%) cancers and focus on HRQOL predictors throughouttreatment. In less than two years since becoming publicly accessible, SEER-CAHPS has over 30 data use agreements and 8publications. Most projects include individuals with breast (67%), lung (67%), and colorectal (67%) cancers and aim to understandsociodemographic and clinical factors associated with patient healthcare experiences. This presentation will provide an overview of recentfindings and future research topics.Conclusions: SEER-MHOS and SEER-CAHPS provide opportunities for research on PROs andexperiences of care across the cancer care continuum. Each resource provides data on a growing number of cancer survivors tohelp enhance our understanding of outcomes and care experiences of Medicare beneficiaries with cancer.
Keywords: patient-reportedoutcomes, patient experienceswith care, cancersurveillance